This has been a day of little change. Still on the light, still has a feeding tube. He has lasted a little longer today the time Becky fed him, but still not long enough. He can get about 2/3 of an ounce and he needs 1-2/3 ounces every 3 hours.
He lost some weight and was down to 5lbs 7oz today. This might be due to the fact that he has pooped more and got shortchanged on two feedings the night they tried him without the feeding tube. No cause for worry, but it was a little suprising.
Ultimately he needs to get his bilirubin levels down the higher that is, the more he needs the lights and the more tired he will be, which means he will not have the energy he needs to eat on his own.
Be in prayer for his "BR" levels to go down and his energy to go up. That will be his ticket out of here. At this point it would be highly optimistice to think he will be able to come home this weekend, but we will see. Hunter is having a difficult time with us being gone so much and him not being able to see Gunner, so you could pray for him too.
We also talked with our "neighbors", in other words the people across the hall and there little guy was born at 26 weeks at 2lbs. He has already had a surgery, and took a bad turn today. He is on a ventilator and might have an infection. It is there first child. His name is Micah. They would also appreciate your prayers.
Being here (at the NICU) it is hard to understand why these families are going through everything they are, I am sure they are asking "why?" Some are going through this without the support of many faithful prayer warriors and I just shutter to think what that would be like. To those who have taken the time to pray for us, and will continue to pray for us - we sincerely thank you! It is natural in these circumstances to have a bunch of people say "your in our prayers," But it is completely different when those who say that actually do pray.
We know Jesus, the author of life, is in control. Just like the old hymn states - It is well with my soul. we can truly say it is well with our souls.
Thank you,
Scott & Becky
Wednesday, October 23, 2013
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