Well 4 steps forward 1 step back...that is still the right direction. Gunner had his feeding tube put back in today. He is not strong enough to nurse long enough to get what he needs. He is improving on the length of time he is nursing today and since his feeding tube is in his nose it does not interfere as much as it did when it was in his mouth.
This is just the next thing he needs to learn and since he so good at latching on they thought they would just see how he did.
He still has his lights and actually his levels went up, so we are farther away from him getting off the lights, but everything else is good, so they think this will resolve, it will just take time.
He is not on his way out of here yet, but he is still progressing in the right direction. Thank you for your prayers.
Tuesday, October 22, 2013
Monday, October 21, 2013
Day 5 (Version 2)
Ok before I (Scott) head home from the hospital tonight. I wanted to post a few pictures. I got to hold Gunner for the first time. Becky got him to latch again tonight and he ate 12ml from her, and another 10ml from the bottle. not quite up to his 35ml he is supposed to have, but this is a great start and everyone is encouraged by it. :) The picture of Gunner, he is really trying to open his eyes, but was also way comfy on dad after eating! He kinda has a funny face on, but it is a tubeless face!!!:)
Gunner Day 5
A great day 5 it was! All last night Gunner kept pulling out his nose piece to his cpap machine so therefore the nurse just let him go without it most the night. In the morning he officially got it removed!!!
For the first time since birth, Gunner is breathing on his own with no help!!! Woo Hoo!
He still has both lights and a feeding tube, but despite that he still managed to latch on to Becky today twice and eat like a "normal" baby would. Now he needs to build his strength up to eat all he needs from Becky. Right now he goes good for a while and tires out. This is normal and actually his nurse today said she has never seen a 34 week baby latch on like he did.
BREAKING NEWS!!! As I was literally typing this update the Doctor came and said we are removing the feeding tube and he will just be fed when he wants it or every three hours what ever comes first. He will do both mommy and bottle, as the bottle takes less effort, and might mean the difference of not having to put the tube back in.
This means he has nothing on him anymore except the normal things that monitor heart rate, breathing and oxygen. NO MORE TUBES IN HIM AT ALL!!!
His next task will be learning to eat all he needs and not falling asleep to soon and getting the UV lights off of him, which might be in the morning, but we have thought that before...
This last 24 hours was amazing, and even the nurses are a little surprised at how fast he has progessed. Praise God!
As far as coming home...we dont really know, but at this rate probably sooner than later. Maybe this weekend!
Thank you for your prayers!
For the first time since birth, Gunner is breathing on his own with no help!!! Woo Hoo!
He still has both lights and a feeding tube, but despite that he still managed to latch on to Becky today twice and eat like a "normal" baby would. Now he needs to build his strength up to eat all he needs from Becky. Right now he goes good for a while and tires out. This is normal and actually his nurse today said she has never seen a 34 week baby latch on like he did.
BREAKING NEWS!!! As I was literally typing this update the Doctor came and said we are removing the feeding tube and he will just be fed when he wants it or every three hours what ever comes first. He will do both mommy and bottle, as the bottle takes less effort, and might mean the difference of not having to put the tube back in.
This means he has nothing on him anymore except the normal things that monitor heart rate, breathing and oxygen. NO MORE TUBES IN HIM AT ALL!!!
His next task will be learning to eat all he needs and not falling asleep to soon and getting the UV lights off of him, which might be in the morning, but we have thought that before...
This last 24 hours was amazing, and even the nurses are a little surprised at how fast he has progessed. Praise God!
As far as coming home...we dont really know, but at this rate probably sooner than later. Maybe this weekend!
Thank you for your prayers!
Sunday, October 20, 2013
Gunner day 4
I am happy to send this update because it is all good!
At this moment Gunner has not needed and extra oxygen for 4
hours and they turned his cpap down a level. Not to mention a very excited big
brother got to see Gunner for the first time today.
He is still keeping his food down, he gained back an ounce
and he opened both eyes today.
The one downer is that his jaundice is not subsiding as
quickly as we thought so he is still on the lights.
He is a real strong little guy, he actually rolled over from
his tummy to his back last night and he picks up his head a lot. He has ripped
his cpap out of his nose about 8 times - 5 in the last hour. I think he is
trying tell tell us he is done, but we will see if the docs agree tonight or in
the morning.
Thank you all for you continued support and prayers - we are
not done with this yet, but things are moving in the right direction. the last
12 hours have been the best progress yet
To answer the most common question - "When is he coming home?" The best guess we have is no more than a week from now if all goes well.
A big thank you to everyone who has taken the
time to pray. God is workingTo answer the most common question - "When is he coming home?" The best guess we have is no more than a week from now if all goes well.
Saturday, October 19, 2013
Gunner day 3
Thank you everyone for your kind words, generosity and
continued prayers. I have some GOOD news!
Gunner started to rip out his IV again, and they were going
to reset it. I said to the nurse, do you really have to since he is keeping all
his food and getting a lot? He was going to have it out tomorrow anyway. So she
called the doc and he agreed with me.
So no more IV - check that off the list!!!
He is very close to not needing any extra oxygen...when that
happens he can get his cpap pressure lowered which would be a step in the right
direction.
More GREAT news is, Becky has got more than enough milk at
this point to supply all he needs. Even though it is through a feeding tube, at
least it is all mommy milk!
We are hopeful that tomorrow he will lose the lights, but we
will wait and see.
Friday, October 18, 2013
Gunner Day 2
Well day two has started. There is some good and bad news to
update you with.
The Bad: he managed to rip out his IV, which required them
to redo it, and after quite sometime of trying they got it. He is not breathing
any better and has actually made a slight turn for the worst. He is requiring
more oxygen and higher pressure from his cpap machine. This can be normal but
if he does not get off the oxygen to day they will do a chest xray to see if he
has anything going on in his ling as far as infection. They also would have to
administer a medication into his lungs through a breathing tube, which would
just be one more thing added to him. He has jaundice which is requiring him to
be laying on a light blanket and have a light over him. This limits him to
being held only 1 hour a day. hopefully that will only last 2 days.
The Good:
Becky has got a little milk coming in and he is getting that
through a feeding tube. He seems to be digesting all of his food just
fine.
We are confident he will improve and
confident in Christ to sustain us through this difficult time. We both have a
peace about this and will just move on one day at a time. Your continued
prayers on his breathing and lung development are so much appreciated.
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